Geremie

Monthly food supplies and Braille classes

Date of birth

February 12th, 2015

Start of care

April 2020

Medical history

Congenital glaucoma

His story

Geremie’s father died in December 2018 in a motorcycle accident. His mother is alone to take care of her 4 children. She cultivates a small plot of land to be able to survive, but this is not enough to provide for her children and to ensure that they have enough food.

Geremie and his brother Emmanuel are both visually impaired. They have had congenital glaucoma since birth, for which we are financing their ophthalmic treatments. We also provide Braille classes for Geremie, so he can have access to an education adapted to his disability.

    Would you like to support the children?

    Project and main actions

    • Preventive and comfort care for glaucoma: eye drops.
    • Curative care: possible surgery for glaucoma.
    • Food supplies: ensuring sufficient food for the family’s four children through monthly supplies of basic necessities (oil, pasta, rice, cereals, beans, soybeans, etc.).
    • Braille classes two days a week, to ensure an education adapted to his disability.

    Updates 

    March 31st, 2021

    Emmanuel, Hope and Geremie had playful classes this week. In addition to the Braille lessons, they explored their environment while learning the French words for everyday objects. This was done with songs, which made it easier to learn. Emmanuel is progressing very quickly. He practices a lot with the Braille slate, writing the letters of the alphabet, which he knows by heart. He is now starting to read sentences in Braille! Geremie is also progressing well, he knows the whole alphabet and is starting to use the Braille slate with the help of his brother. He always makes everyone laugh during the classes. As for Hope, she is having a little more difficulty learning the letters, but she is very motivated and loves learning with her classmates!

    We also carried out the monthly food supply for Geremie and Emmanuel’s family. 

    February 23rd, 2021

    Braille classes are going well! Emmanuel loves learning Braille, and already knows the whole alphabet by heart. He first started using a wooden board with 6 holes, and he is now practicing with a Braille slate. Geremie continues to learn the Braille alphabet and makes good progress every week. He also practices representing objects, animals and other shapes using play dough. As for Hope, she has not yet been able to grasp the tools for learning Braille writing. Eli, our teacher, is currently focusing on games, songs and exercises to teach her the French language.

    February 2nd, 2021

    We gave Eli the donations we received for the project and introduced them to the children. They were all happy to use these new learning tools.

    Geremie already knows the Braille alphabet down to the letter “O”. He is very keen and learns quickly.

    January 14th, 2021

    This week, Hope and Geremie learned to greet each other in French. They have also started learning how to write the letters of the alphabet in Braille. Geremie quickly learned how to write the letters up to “H”. This takes a little longer for Hope, as she had never learned French until now.

    Eli uses many tools, including play dough, so they can learn to shape different objects, such as clothes. They are very happy and proud to go to school like all the other children, and they love learning while having fun.

    January 8th, 2021

    Geremie and Hope had their first Braille sessions this week! They get along very well with their teacher Eli, and were thrilled to start their first classes. A room is reserved for them in our center so that they can work in the best possible conditions.

    During the first sessions this week, the children discovered the tools for learning Braille. Eli introduced them to the Braille slates & styluses they will use for reading and writing.

    Since Geremie and Hope are still very young (5 and 6 years old), Eli uses a lot of games to facilitate their learning. In order to animate the classes, and offer them activities appropriate to their age, Eli also teaches them songs, which they both have fun learning!

    January 5th, 2021

    We made the monthly supply for Geremie, Emmanuel and their family. They are all doing very well!

    November 11th, 2020

    Ophthalmologist consultation

    We took a second opinion on the treatment of glaucoma. The doctor who received us was very empathetic but clear about their situation. Unfortunately, glaucoma is irreversible at this stage of the disease. They have been living with it for far too long, and the damage to the optic nerve is too advanced. However, to delay the progression of the disease, there are medicated eye drops, which protect the eye from ocular hypertension, responsible for the destruction of the optic nerve. These eye drops are very expensive and must be administered for the rest of their lives.

    Ongoing support

    In addition to the monthly food supplies that we provide for Geremie, Emmanuel and their siblings, we now finance the cost of regular follow-up consultations and the purchase of various eye drops, ophthalmic creams and physiological serums.
    Geremie has not been attending school as he can hardly see anything anymore. This makes him very sad, as he often stays at home alone and bored. We are looking into giving him access to Braille classes.

    October 3rd, 2020

    We carried out a food supply for Geremie and Emmanuel’s family, as well as for Nestor and Natacha. Geremie and Emmanuel have been on a new treatment since last month. Emmanuel, who was complaining of headaches, told us that these have disappeared since the beginning of the treatment. We will meet them again next month for a follow-up consultation.

    September 17th, 2020

    Geremie and Emmanuel had an appointment with an ophthalmologist in Lomé. He examined the children and confirmed that their glaucoma is very advanced, as it was not treated from birth. The surgery is possible, but given the progress of the disease, he cannot guarantee that their vision will improve. The surgery is performed under general anaesthesia, but the clinic equipped for this kind of surgery is currently requisitioned because of COVID-19. He advised us to consult another ophthalmologist for a second opinion. In the meantime, he has prescribed more powerful eye drops to help reduce their pain. 

    September 8th, 2020

    We visited Geremie and Emmanuel today. Célia, who is currently in Togo, introduced herself to the children and their mom, who expressed a lot of gratitude. The roads to Lomé being now opened, we will make an appointment with the ophthalmologist this week.

    July 8th, 2020

    Today, our Head Nurse, Evrard, carried out the monthly food supply for Geremie, Emmanuel and their family. In addition, we gave 5,000 FCFA (7.5 euros) to their mother so that she can finance the use of the mill to grind flours as well as their use of water. We provided them with eye drops which allow Geremie and Emmanuel to hydrate their eyes and reduce their pain while they wait for an appointment with an ophthalmologist in the capital (the roads are currently closed because of Covid-19).

    June 10th, 2020

    We regularly bring food supplies to Geremie and Emmanuel’s family. These are composed of rice, spaghetti, oil and tomatoes.

    Contact us

    70A Impasse de l’Amiradou
    83190 Ollioules, France

    +33 6 61 73 08 64

    (English contact)